4 million euros awarded to EU project PanCareSurPass, to improve long-term care for survivors of childhood and adolescent cancer by widely implementing the European digital Survivorship Passport.

One of the challenges for long-term follow-up care is informing survivors about their personal risk of long-term effects and there by empower them to manage their own needs for care and support, together with their healthcare professionals. The Survivorship Passport (SurPass) was developed by a number of EU-funded projects as a tool to help overcome this challenge. The SurPass is available in electronic, as well in paper format, and provides survivors with a complete overview of their treatment and thanks to built-in algorithms gives personalised recommendations for follow-up care based on a combination of the internationally approved IGHG guidelines (www.ighg.org) and the PanCareFollowUp guidelines. However, the SurPass has not yet been widely implemented in Europe.

17 partners from 8 European countries (Austria, Belgium, Germany, Ireland, Italy, Lithuania, Netherlands, Spain) are joining forces to further develop the SurPass and create a strategy for European implementation. Part of the development work will include linking the SurPass to electronic health information systems (e.g. hospital medical record, national health records, where available) to improve the accuracy of health information available and reduce the time needed to generate the SurPass for each patient. The new SurPass version will be launched and tested in a multi-country study in Austria, Belgium, Germany, Italy, Lithuania and Spain.


More information in the Press release